Walk in the Afterlight: extract

“Your mum is a patient here?” asked Beth with sympathy. “Gosh, she must be young.”

Kallie smiled. “She’s not far off seventy. She was nearly forty when she had me. But dementia can strike at any age, even in children, so I understand. Mum’s in great health physically, so she could be here for a long time.”

Beth asked where Kallie’s mother was now and she explained again about the safe room.

“I won’t see her again today, because she’ll walk herself to exhaustion and they’ll put her straight to bed. She was only here a matter of weeks before her memory became severely affected and it wasn’t long before she didn’t recognise me any more.” Kallie looked rueful. “Sorry, you don’t want to hear all that when you’re probably going through the same thing. It was nice to meet you, though I’m sure we all wish it was under better circumstances.”

Kallie gathered up her coat and bag and left the lounge, giving Alex, Beth and Anna a small smile and a wave of her fingers. Alex followed her with his eyes.

“I know that look,” said Beth. “Does she have someone with her?”

“Two people,” he replied. “Her grandparents, I think. I could sense them when she and I were talking, but either they weren’t aware of me or just didn’t want to communicate. I think they’re just watching out for her.”

“Maybe Kallie’s mum is their daughter and that’s why they’re here, watching over both of them?” Beth squeezed his hand. “Why don’t you go outside for a bit, Alex?”

He set off to find his favourite bench, the one hidden from the lounge windows but with a good view of the striking water sculpture.

Once past the area that had been laid out as a giant checkerboard, Alex was pleased to find there was no-one else around. He sat down and contemplated what he’d just witnessed inside, allowing the gentle, musical sound of running water and the little tinkling bells to soothe him. He decided he didn’t know nearly enough about dementia in general and Simon’s condition in particular, and needed to do some research. If only he had the time! He shouldn’t even be here now, but he’d come for Beth’s sake and he was glad that he had.

“Would you mind if I sit here?” a friendly voice asked, bringing him out of his reverie. “It’s my favourite place as it can’t be seen from the house and I can get a precious few minutes uninterrupted.”

Alex looked up at the slender figure in front of him, delighted to see that it was Erin, and invited her to join him.

She sat down beside him, her knees audibly clicking. “Sorry about that.” She laughed. “My knees have always clicked and the years of bending and lifting takes a terrible toll on the joints, even when you’ve been trained to do it right. Shame Simon had to go into one of his strops just as you and Beth were walking in. Is Anna okay?”

“She’s fine and you were marvellous, as always. It amazes me how you stay so calm. Would you like to be alone? I’d say you deserve some peace and quiet after what you’ve just had to deal with, but I suppose it’s all part and parcel of the working day for you, isn’t it?”

He made to rise but Erin placed her hand on his arm and gently but firmly prevented him from leaving.

“Actually, Alex Kelburn, I’ve been stalking you!” She laughed, making her face look years younger. “I’ve seen every episode of your TV show, I’ve read your book, and whenever you’ve come to the hospice to give one of your inspirational talks I’ve been sure to be there. Everything about you is absolutely fascinating to me and since your wife’s grandfather came in I’ve been waiting for an opportunity just to talk to you! Can I ask you a question?”

She bit her bottom lip and a slow blush rose from her neck upwards as she waited for his response. He assumed she was going to ask if he could give her a message from a late member of her family or a friend, so he nodded, more than willing to help someone who worked as hard and as compassionately as she did.

Everyone noticed how kind, how gentle she always was with the residents, and the dementia lounge seemed a much duller place when she wasn’t on shift. She asked her question but it wasn’t at all what he expected.

“Where do they go, the patients who no longer seem to be aware of themselves or their surroundings? I mean, take Simon. One moment he’s angry and shouting, the next it’s as if he’s simply left his body behind and gone somewhere else. Some of the patients are like that all the time, never having lucid moments at all, and I’ve always wondered… where do they go?”

Alex smiled at the question, glad that it was one he could answer. It might even help her.

~~~~~

Want to know more? ‘Walk in the Afterlight’ is available in paperback and kindle formats from Amazon, for all e-readers from Smashwords.com, and to order from all bookshops.

(This is a revised and re-edited version of ‘The Waiting Gate’, published 2017)

A Dog Called Donut – a true story (part III)

A lovely day in our favourite place, Marloes Beach, Wales

Quick links to previous episodes: Part I ; Part II

Darcy was showing his age. His beautiful golden eyes were a little milky, his muzzle had turned grey, he slept twice as long, he was slow to get up. When I noticed a couple of lumps on his body my heart sank and a trip to the vet confirmed that he had cancer. At around fourteen years of age, and because he’d always been fearful of the vet, we decided we didn’t want him treated with steroids or anything designed to prolong life, but just keep him comfortable for the months or weeks he had left.

When he didn’t want to eat much or go out for even the shortest of walks any more we agonised over when would be the right time to have him put to sleep. We all know it’s a kindness, but I wanted desperately for Darcy not to need that last, painful visit, I wanted him to pass away in his bed. To just go to sleep and not wake up. I would lie on the floor with him, stroking his velvety ears, telling him gently that it was time for him to leave us. I told him to go to my father because I was sure he’d be waiting for him as they’d had a very special relationship.

(Mind you, when we told Dad we were adopting a problem dog called Donut from Battersea he thought we were, quote, “mad”!! Why, he demanded to know, would we take on a dog with such issues rather than get a puppy with a known pedigree that we could train from the beginning. But when he met him on the day we took him out of Battersea Old Windsor, he adored our Donut-renamed-Darcy from the start and always wanted to look after him when George and I went away on holiday. When Dad died and we went with Darcy to his house to sort some things out, Darcy sniffed all round the Dad’s armchair, and then went off as if looking for him.)

So, that’s why I begged Darcy to just let go and cross over to Dad, but Darcy would not make it easy for me. He did not die in his bed, and then came the day that he looked at us with that unmistakable plea in his wonderful, black-rimmed eyes that told me I was to stop being selfish because he needed to be helped on his way.

Darcy loved going out for a drive, so we decided to take him out for a last little jaunt before going to the vet, and we arranged it so that he would be put to sleep in our car. I was in bits even before George lifted Darcy into the car, and couldn’t stop crying as we drove around for a while before parking up and letting the vet know we’d arrived. George, who had heard and been so determined to answer Darcy’s plea to take him away from Battersea all those years ago, held him while the injection was administered and took hold. While I held Darcy’s paw, George held Darcy across his lap, whispering that he could let go now, that we loved him and had been privileged to have been chosen by him. Darcy visibly relaxed in George’s arms and took his last breath. It was over.

From there we took him straight to the pet crematorium, a lovely place called Charlies Parlour in Bradford-on-Avon, where the owner, Paul, was waiting for us. Paul couldn’t have been kinder. Obviously used to distraught people arriving on a daily basis, he helped us deal with what had to be dealt with, and we knew Darcy would be treated with dignity throughout the cremation process. We left him in Paul’s care, arranging to return the next day to collect the ashes, which would be in a prettily-decorated cardboard tube. I was also presented with a packet of forget-me-knot seeds and a paw print. The paw print broke me all over again!

We buried Darcy’s ashes in our garden, next to the red and white ‘Nostalgia’ rose we had planted for Dad, with a little metal dog on a wooden plinth marking the spot.

Oh, how different the home is when the companion animal has left it! How heart-breaking to put their bed, toys and food dishes away. How sad the familiar routes when your beloved four-legged friend is no longer walking alongside you, sometimes running ahead and coming barrelling back again in the hope of getting a treat.

Every day I wondered if he visited us and, if he did, why I couldn’t sense it or see him, because I’d once had a strange experience at a friend’s house. Back then, many years ago now, we’d both had cats called Pepper. My friend had made coffee and I was seated in an armchair by the door. Pepper came strolling in and rubbed herself against my legs, I put my hand down and stroked her head. When I looked up my friend was staring at me with a perplexed expression, and asked me what I was doing. Perplexed myself by the question, I looked down again and Pepper was no longer there. My friend then told me she’d been put to sleep the previous week, and she’d been about to tell me!

I never had an experience like that with Darcy, the first message from him came in the form of a butterfly. I was walking across the fields to the next village, a walk I’d done with Darcy almost daily, and I was missing his presence every step of the way. As I approached a hedgerow that marked the gate that took me across the boundary into the next village, I noticed a little golden-brown butterfly. The colour was similar to Darcy’s eyes, so perhaps that’s what made me stop to take a closer look, and I saw that it had a piece of its wing missing, like something had taken a bite out of it. I think I murmured something to it about hoping it could fly all right, then, thinking no more of it, I carried on to the local shop and then walked home again, a round trip of forty five minutes.

It was a lovely August day so when I got home I decided to sit on the swing-seat in the garden, close to the rose bed where Darcy’s ashes were. Out of the corner of my eyes something fluttered and landed near my feet…

I looked down…

There on the ground in front of me was a golden-brown butterfly with a piece missing from its wing. It had followed me all that way, and I felt a shiver travel up and down my spine because it was so incredibly like Darcy’s eyes.

A very poor image of the photograph. I was taken by surprise and fumbled my phone

But one question still remained: was he with my dad?

In January the following year I had a reading with a medium at her home. I hadn’t told her anything, in my research for my writing I always go along to such meetings offering no information and with no specific expectations. About half way into reading she asked if I had a puppy. I said yes, I had become a volunteer Puppy Raiser for Guide Dogs for the Blind and we had a 4-month old Labrador/Golden Retriever cross. She said, “When he was tiny he slept in a cage or a crate at night and he never cried did he?”

I confirmed that he hadn’t disturbed us during the night at all, that from the day we’d got him the previous November, he’d always settled in the puppy crate very quickly. “Well,” the medium said, “he’d had a companion that came at night to keep him company for as long as it was needed. It’s a fairly large dog, with a black and brown coat.”

I told the medium that it must be Darcy, who’d died a couple of months before the puppy arrived, and I asked, “Can you tell me where Darcy is now?”

The medium seemed to consider for a while and then she said, “Your dad is here. I see that black and brown dog by his side. I’m being shown an image of your dad lying on a deck chair in the sun, with this dog underneath. Your dad is telling me that there is a photograph of this.”

This photograph sits on the sideboard in the dining room of my dad’s partner’s house. Dad was a sun-worshipper, and she had taken the photo while he was sleeping in his deck chair in the garden, Darcy snoozing beneath him.

I’d had all the evidence I needed. Darcy, that dog once called Donut and who’d had such a miserable start in life, was safe and happy in spirit with someone who’d loved him as much as George and I had.

The end.

Writing Matters #3: the hospice patient

Real life events inspire my writing, and here is an example from ‘Walk in the Afterlight’. Rainstones House in the novel is a fictional place where one wing is a hospice and the other a residential dementia care home. The hospice scenes in the story are from my experiences being a volunteer at a local hospice a few years ago. I occasionally assisted in the Day Patient Unit, but my main role entailed visiting a patient with a life-limiting illness at their own home. I was assigned to a delightful elderly lady, many years a widow, whose life expectancy was about one year due to stomach cancer. When I started visiting her she was a lively person. Always beautifully dressed, with her nails painted, her hair immaculate, she would sit on the sofa and tell me stories about her life and give her opinions on current events. I so enjoyed our conversations and debates on all sorts of topics. Of course she was frail and the physical changes in her in the time I visited were all too apparent, but after a couple of months I began to notice mental changes too. These were so rapid it seemed that one week she was the lady who looked forward to my visits and the next she seemed not to know me at all. She kept asking who I was and if she owed me money. I had been advised to answer her questions each time as if it was the first time she’d asked me, so I would tell her my name, explain that I came every week, and she didn’t owe me any money. She would accept what I said for a short while and then ask me again. And again. And again.

All too soon she was bed-bound, not knowing who and where she was. Clearly she had dementia, and this could have been the result of the cancer reaching her brain. Whatever caused it, the vibrant lady I had known had completely disappeared and I found myself wondering: ‘where has she gone’?

I was not sad when she died for she had told me early on in our acquaintance that she knew her husband was waiting for her to join him, and she was looking forward to dancing with him again. When the hospice contacted me to tell me of her passing, this is how I chose to think of her.

I never forgot her and as the idea for this novel began to take shape in my mind, the experience with her was the trigger-point. Through extensive research I learned of some intriguing and wonderful theories about what might happen to us when the mind no longer functions but the body goes on living, and this is what the story is about.

ISBN 9780956795441

(Previously published as ‘The Waiting Gate’)

Jane, 28th October 2020

Writing Matters #2: the leaf

In my first Writing Matters blog I wrote about how I had taken back the rights to my novel ‘The Waiting Gate’, thoroughly revised it and published under my own imprint with a gorgeous new cover and a new title: ‘Walk in the Afterlight’.

Although I felt I had done the right thing, there was always a little niggle at the back of my mind that maybe I hadn’t. I belong to a fantastic support group, Alliance of Independent Authors (ALLi) and when I posted on the forum about changing the title of a published book I had mixed responses. Some said go for it, some had actually done it and considered it the right thing to do, others said it was a risk. As you know, I decided to go ahead and I’m very proud of the result. But still… that niggle wouldn’t go away. Until I got a little message that convinced me I had done the right thing.

At the beginning of this month I was fortunate enough to visit our Greek home for two weeks, a place of tranquility and beauty where I always find it easy to write. Every morning I set my laptop up on the marble-topped table on the patio, work on and off throughout the day, then pack up for the evening and watch the sun go down (yes, lucky, lucky me!).

On this particular morning, I’d gone into the house to make coffee, and when I came out I noticed a leaf. It is a large patio, but there was just the one leaf. A couple of feet from my chair.

Study that for moment and then look at the cover:

It literally sent shivers up and down my spine.

Jane, 19 October 2020