Writing Matters #4: turning off life support

In Writing Matters #3 I talked about an experience that inspired me to feature a character with dementia in my novel ‘Walk in the Afterlight’. I wanted to write about something that several psychic mediums had assured me of: that the mind/spirit/soul of someone in the depths of dementia has crossed into the Afterlife, even though physically they are still on this side. I thought it a wonderful way to look at what is a devastating illness and I hope this is conveyed in the story.

In this blog I’d like to tell you about another experience that both inspired and informed me when I was writing this novel. A character is on life support following a heart attack, and when complications arise that show there is no hope of recovery, her family elect to have life support withdrawn. This is the situation I found myself in with my father.

Dad had had several bouts of heart problems, the first happening when he was only in his fifties. In his seventies he had to have a triple bypass, but sadly the wounds caused by the removal of veins from his leg to create one of the bypasses refused to heal. It seemed that he couldn’t recover from the surgery, and a couple of months later I got the dreaded phone call that he had been rushed to hospital with heart failure and was in Intensive Care.

I had a two-hour drive to get there, and as I drove along the motorway I pleaded with the powers that be not to take my dad. Suddenly, like a film running inside my mind, that incredibly I could see and yet still be able to drive safely, I saw Dad sitting in an armchair, connected to oxygen, looking very ill, diminished and defeated. A soft voice asked, “Is this what you want for him?”

I arrived at the hospital, ran full pelt to ICU where a couple of family members who lived nearby were already waiting. I was allowed to see Dad and then asked to go with the others to the family room, where a consultant would come and talk to us.

It was bleak. Without a transplant they could see no hope for Dad, and because of all his health issues, it was unlikely he would even be considered for one. But if he was, finding a suitable donor could take years. Years of being kept alive by machines. I knew how much Dad would hate that. And the decision about what to do for him was solely mine, because I was his next of kin.

My aunt, Dad’s sister, said she could hear Dad saying that he wanted to go, and I knew that he wished it too. So I made the hardest decision I’ve ever had to make, and hope never to have to repeat. We were warned it could take hours for Dad to pass away once life support had been removed, but my aunt and I believed he had already crossed over and he was just waiting for us – waiting for me – to allow his physical body to die and so set him free. A nurse came back into the family room just minutes later and told us that Dad had died the instant the ventilator had been switched off.

I knew with every fibre of my being that I had made the right decision, yet I still had moments of doubt and longed for a sign that I had done the right thing. It took four years before Dad came through to a psychic medium to give me that sign! I did not know this medium, but when I saw she was coming from London to give readings at a spiritual centre that I knew well, I didn’t hesitate to make an appointment. She described that day in the hospital so clearly – who was there, what had happened – she could only have been hearing it from Dad. She even said that while we’d been in the family room he’d been shouting at us to let him go! He told me that he deeply regretted that I’d had to make the final decision, and he knew there’d been some argument about it with a third family member, but he was so very grateful that I’d held firm.

That was fourteen years ago. I think about Dad every single day, knowing that he’s close and watching over me and, more importantly, he’s very happy where he is.

~~~

PS: Just after I’d written this and scheduled the date for it to be automatically published from my website, my dad’s sister died. We know she is with Dad, their mum, my brother, and other loved ones who greeted her when she crossed over. No RIP for my dearest aunt, she’ll be kicking up her heels and showing everyone how to party, just as she did when she was here!

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